Georgia's genetics testing came back today, normal. Huge relief there. More tests are pending that could find a smaller abnormality, but one less thing to worry about there.
Georgia caught her first stomach bug yesterday. Chloe was deathly ill with the stomach flu and shared it with little sis. Poor Chloe was sick for well over 24 hours. Georgia recovered a bit quicker. The tube played a huge role in this, and actually, I've discovered another reason to love the tube. You know usually when babies are sick you hold them and a bucket and just pray you can catch it. Countless loads of laundry, baths, and showers fill your day. However, as soon as I realized Georgia was not just doing her "normal" throw up and she was actually sick I just decided to empty her stomach contents through the tube. I did this for her several times through the night. So she threw up out of her stomach. Much easier this way. The next day I gave her fluids through the tube to keep her hydrated. You could tell she didn't feel good, but the tube helped it be better than it would've been. I have not gotten sick, neither have the boys & I pray they won't!
The tube has become so normal to me. I notice people staring in a public place and I can't figure it out, then I remember I'm pushing milk through a tube in my daughters stomach. Just how we do it here lately
In fact, I quit pumping, but still have two freezers full of breastmilk, so she'll get breastmilk longer than my other three kids without all the work ;). I've totally resigned myself to tube feeding, although I still hope that she will be able to transition to oral feeding before she starts school. I worry that all the work they've done on her has created even more problems & could prolong her recovery. I just gave to put that in Gods hands & hope she will get right on eating!
Monday, April 15, 2013
Monday, March 18, 2013
Live life love it,,,
I've had the Avett Brothers song, "Life" in my head all weekend "Live life, love it, be grateful for it, we're not of this world for long,,," & it all culminated today with a great visit with Georgia's GI. She continues to grow, he's liking the progress. She's still not on the charts for her weight, but the growth rate is improving. He approved her to start having small tastes of food. He also is pushing for her to get some intensive feeding therapy and vital stim therapy to help her swallow develop. He said every note I read on her the doctor or therapist talks about what a happy, sweet, adorable baby you have. People just fall in love with Georgia she has a sweet, special spirit.
Driving home I had a deep impression about the love that Heavenly Father has for me. Not just because Georgia's doing so well, but honestly I'm grateful he trusted me with her and this trial. My family has grown & learned so much. My capacity to love & understand others has grown. My testimony of service has grown. Most of all, I have learned to have faith in God & trust in his plan for me.
Driving home I had a deep impression about the love that Heavenly Father has for me. Not just because Georgia's doing so well, but honestly I'm grateful he trusted me with her and this trial. My family has grown & learned so much. My capacity to love & understand others has grown. My testimony of service has grown. Most of all, I have learned to have faith in God & trust in his plan for me.
Tuesday, March 5, 2013
Moving forward!
J tube got pulled today. I promised myself I wouldn't back down on wanting it surgically removed. He told me she has already had one too many surgeries & didn't want to do another for the 5 % chance it would create a twisted bowel one day. Said the scar tissue he'd create would likely only raise chances there would be bowel problems in future. So he literally pulled out her j tube right there & after 6 months of wanting it out, I wonder if I made the right choice,,,trying not to live in past.
On a high note, SHE IS CRAWLING!!!! On march 4th, her nine month bday she just took off, like she'd been doing it all her life. So exciting!
On a high note, SHE IS CRAWLING!!!! On march 4th, her nine month bday she just took off, like she'd been doing it all her life. So exciting!
Wednesday, February 13, 2013
You know, I have other kids too.
My life revolves so much around Georgia and my other kids have been through so much. Now that I have a nurse they are getting the attention they need again. Chloe has become this wonderful kid. Great listener, helpful. She folded three loads of laundry today & put it all away. She's always been so old for her little body, since the day she was born. She feeds the animals everyday. When she's feeling sad or mad about our situation she sits and tells me and I let her. I tell her it's okay to feel that way, I remind her of our blessings & how much Heavenly Father loves us & I promise to buy her a nice car when she turns 16. And if we can afford it I will. She deserves so much, she's helped me more than anyone. I hope she doesn't resent me when she's older for how much she's had to help.
Sawyers a whole different story. He acts out, can't sleep, play, or anything if its not right next to me. I let him sleep with me because if he doesn't he's screaming. He's afraid of me leaving. I took him to the doctor today and they think he needs adenoids & tonsils taken out. The doctor says the surgery isn't scary, blah, blah, blah. I wanted to say, do you think adenoids & tonsils scare me?!? Haha! But it does scare me & I know I won't be able to stay with him at hospital after because I can't leave Georgia and that kills me. They want them out because he has suspected childhood sleep apnea. He has never slept we'll, has dark circles under his eyes. Dr said a lot of his behavioral problems may get better when he can sleep at night. One thing about sawyer is he loves so much. He has the biggest heart. Chloe was playing with the remote and a bad show came on. He was so worried, Mom the Holy Ghost is going to leave & we won't be protected. He has a simple faith, like when I got sick and as soon as he noticed he knelt down to pray I'd feel better. Lets hope we can get him some better sleep and the attention he needs to feel safe & happy again.
Cash was super clingy, freaked out everytime I got close to the door, but he's gotten back to normal as quickly as a two year old does. He's my easy guy, potty trained himself, cleans up his lego messes first time I ask him to. Just a good kid. Happy & sweet.
My friend from our old ward came by the other day and mentioned what patient, kind mom I was. I was so embarrassed because that mom left the building a long time ago! I have been horrible to my kids since Georgia came home. Ive had no discipline, and yell a ton. They've been fed & cleaned and that's about it. Having this nurse has been amazing. I've jumped on the tramp with cash & sawyer, done homework with Chloe, taught cash his shapes, sawyer likes learning about space. Hopefully, I can begin to live up to my rep of being a good mom again now that I'm not constantly holding a choking, throwing up baby.
Sweet Georgia is growing, we're up to size three diapers, woooohooo! The pt hopes she'll crawl this month! Keep praying for us we need it!
Sawyers a whole different story. He acts out, can't sleep, play, or anything if its not right next to me. I let him sleep with me because if he doesn't he's screaming. He's afraid of me leaving. I took him to the doctor today and they think he needs adenoids & tonsils taken out. The doctor says the surgery isn't scary, blah, blah, blah. I wanted to say, do you think adenoids & tonsils scare me?!? Haha! But it does scare me & I know I won't be able to stay with him at hospital after because I can't leave Georgia and that kills me. They want them out because he has suspected childhood sleep apnea. He has never slept we'll, has dark circles under his eyes. Dr said a lot of his behavioral problems may get better when he can sleep at night. One thing about sawyer is he loves so much. He has the biggest heart. Chloe was playing with the remote and a bad show came on. He was so worried, Mom the Holy Ghost is going to leave & we won't be protected. He has a simple faith, like when I got sick and as soon as he noticed he knelt down to pray I'd feel better. Lets hope we can get him some better sleep and the attention he needs to feel safe & happy again.
Cash was super clingy, freaked out everytime I got close to the door, but he's gotten back to normal as quickly as a two year old does. He's my easy guy, potty trained himself, cleans up his lego messes first time I ask him to. Just a good kid. Happy & sweet.
My friend from our old ward came by the other day and mentioned what patient, kind mom I was. I was so embarrassed because that mom left the building a long time ago! I have been horrible to my kids since Georgia came home. Ive had no discipline, and yell a ton. They've been fed & cleaned and that's about it. Having this nurse has been amazing. I've jumped on the tramp with cash & sawyer, done homework with Chloe, taught cash his shapes, sawyer likes learning about space. Hopefully, I can begin to live up to my rep of being a good mom again now that I'm not constantly holding a choking, throwing up baby.
Sweet Georgia is growing, we're up to size three diapers, woooohooo! The pt hopes she'll crawl this month! Keep praying for us we need it!
Monday, February 11, 2013
Busy busy busy
I've gotten bad about updating, I feel busy. Busier than I've ever felt in my life. I get up to feed Georgia at six and get done with her last feeding at midnight. I don't find a time to sleep during those hours and I've never loved bedtime more.
The exciting updates are;
The neuro was impressed/shocked by her improvement and no longer wants to do the spinal tap. He thinks she'll keep growing & recovering. Miracles come in many packages & I think our miracle had a lot to do with dr Higgins the DO who has been doing cranial manipulation. The neuro & her ped said when we saw her at first she had no grip and very low neck control. Crazy!!!
We got a nurse. She comes from 10-4 Monday-Friday. Amazing help, but feel guilty dumping Georgia off. Georgia hates it & cries for me, but I get time to clean & play with my other kids.
The funniest thing, we had therapy today, which we are now getting weekly. The gal brought out every toy in her arsenal trying to get Georgia to roll because she says she can do it she just won't. Georgia looses her mind when the therapist even looks at her. Hates therapy. Well, today we are at her peds office he sets his pen down and she rolls right over grabs the pen?!?!? Georgia, we knew you could do it and after all the fun toys we try to show you, you roll for a pen!
She will get on her hands & knees & rock. Hopefully will crawl soon. We have to painstakingly show her she can move. The therapist says she's very uncoordinated, especially when trying to move hands & feet or switch from left side to right. Scares me, hopefully she can learn to coordinAte on her own.
We feel blessed!
The exciting updates are;
The neuro was impressed/shocked by her improvement and no longer wants to do the spinal tap. He thinks she'll keep growing & recovering. Miracles come in many packages & I think our miracle had a lot to do with dr Higgins the DO who has been doing cranial manipulation. The neuro & her ped said when we saw her at first she had no grip and very low neck control. Crazy!!!
We got a nurse. She comes from 10-4 Monday-Friday. Amazing help, but feel guilty dumping Georgia off. Georgia hates it & cries for me, but I get time to clean & play with my other kids.
The funniest thing, we had therapy today, which we are now getting weekly. The gal brought out every toy in her arsenal trying to get Georgia to roll because she says she can do it she just won't. Georgia looses her mind when the therapist even looks at her. Hates therapy. Well, today we are at her peds office he sets his pen down and she rolls right over grabs the pen?!?!? Georgia, we knew you could do it and after all the fun toys we try to show you, you roll for a pen!
She will get on her hands & knees & rock. Hopefully will crawl soon. We have to painstakingly show her she can move. The therapist says she's very uncoordinated, especially when trying to move hands & feet or switch from left side to right. Scares me, hopefully she can learn to coordinAte on her own.
We feel blessed!
Wednesday, January 2, 2013
Blessings of 2012, looking forward to many more in 2013!
Happy New Year! If you've read my blog, you'll know I set a goal date when I left the hospital with Georgia. At first, I really wanted to see her tube free by that date, the closer we approached, the more I learned, it became clear she wouldn't be swallowing anytime soon. I have now borrowed a phrase from a friend, if she's tube free by kindergarten, I'll be thrilled! However, I feel my goal date of January 1 was reached, in ways that are almost imperceptible.
First, Georgia finally got approved for services, everything! In home nursing, feeding, physical, and developmental therapy once a week. It was crazy because the lady was rushing to see me before Christmas because she said the deadline they had to make there decision was up right before the first of the year. So huge blessing happened by jan 1st. Now she has all the help she'll need to be her best self, whatever that entails.
Second, she hit 12 pounds. My nurse told me that most babies your just happy if they double their birth weight by six months, so I got attached to 12 pounds and as her seven month mark approached, I was so eager to hit 12 pounds. Well her last weigh in before New Years she was 12 pounds on the dot.
Third, SHE'S IN SIZE TWO diapers!!! Bought my first pack before January 1st!
Fourth, she almost rolled off the changing table on New Years. Sounds like a negative you say? Nope, when you don't have to worry about your almost seven month old rolling, that's scary. So I was so happy that while I was drawing up her morning meds, she surprised me by trying to roll right off the changing table. I was standing right there, so no harm came to the baby in this story!
Last, yesterday I was telling Blake, she's really not laughing out loud and no high pitch squeals yet. She's not babbling either (bababa, dadada, mamama). He said, it will come at her own time. So today Chloe & I are playing with her and she puts those little lips together and I hear bababa. Chloe says, she said mama! Either way, such a soft voice, and so sweet!
All these blessings help me feel Gods love for me & my family, especially little Georgia. Now I can set a new goal, do I dare wish for tube free June 2014? Maybe?
First, Georgia finally got approved for services, everything! In home nursing, feeding, physical, and developmental therapy once a week. It was crazy because the lady was rushing to see me before Christmas because she said the deadline they had to make there decision was up right before the first of the year. So huge blessing happened by jan 1st. Now she has all the help she'll need to be her best self, whatever that entails.
Second, she hit 12 pounds. My nurse told me that most babies your just happy if they double their birth weight by six months, so I got attached to 12 pounds and as her seven month mark approached, I was so eager to hit 12 pounds. Well her last weigh in before New Years she was 12 pounds on the dot.
Third, SHE'S IN SIZE TWO diapers!!! Bought my first pack before January 1st!
Fourth, she almost rolled off the changing table on New Years. Sounds like a negative you say? Nope, when you don't have to worry about your almost seven month old rolling, that's scary. So I was so happy that while I was drawing up her morning meds, she surprised me by trying to roll right off the changing table. I was standing right there, so no harm came to the baby in this story!
Last, yesterday I was telling Blake, she's really not laughing out loud and no high pitch squeals yet. She's not babbling either (bababa, dadada, mamama). He said, it will come at her own time. So today Chloe & I are playing with her and she puts those little lips together and I hear bababa. Chloe says, she said mama! Either way, such a soft voice, and so sweet!
All these blessings help me feel Gods love for me & my family, especially little Georgia. Now I can set a new goal, do I dare wish for tube free June 2014? Maybe?
Thursday, December 13, 2012
Silver Boobs
Ok, someone gave me the award system. Haha! Somehow it is encouraging!
1 month - glitter
2 months - brass
3 months - bronze
6 months - silver
9 months - silver with gold nipples
12 months - gold
18 months - platinum
24 months - diamond
2 months - brass
3 months - bronze
6 months - silver
9 months - silver with gold nipples
12 months - gold
18 months - platinum
24 months - diamond
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