Hope

Ok, I've decided I don't dislike all neurologist,,,I found another one I liked yesterday. He said there is still a fear this could be a progressive muscle disease. However, he says he would not recommend putting her through the tests to prove or disprove it. He said this could be cerebral palsy also, but there is so much of a spectrum, its immpossible to predict how it will affect her.  Cognitively & physicaly she looked fine, except a few tone issues (maybe,shes still so young and has had so many set backs) in her neck and cheeks.  Time will tell. The interesting thing is, he has treated a patient with similar issues. He cautioned me on getting too excited because these swallowing issues are so diverse and can be caused by a number of small issues. However, because of the similarities he thinks it's worth getting a spinal tap to make sure there is no fluid on the spine. That's what the other patients problem was and simple meds fixed her problem,,,,AMAZING!  It's a renewed hope!  I have to wait to get an appointment with the neuro who will do this test, then wait for the test. Georgia's ped is going to try to speed up the process. If you read this blog just pray from now until that time that something that easy could fix her problems. Either way, he gave her a script so we can begin to receive therapies and a nurse who will come into the home so I can have some help. So productive visit and we love our little toot no matter what the future holds!