Monday, October 1, 2012

New normal

I have not written in a few days and that's good, because nothing has really been going on. Things are still changing for the better and that's the kind of change we want!  I'll sum up the week very quickly.

First, all the physical therapists and the last nuerologist we saw were very worried about her neck muscle tone. I'm sure if you have a child you've seen the pediatrian do this test during well checks, but you didn't think much of it, like me. Anyway, it's the test is when the grab them by the wrists and pull them up. Their little chins should go up towards their chest and tuck in while you pull. Georgia's head would just flop right back. It was as if she couldn't move it up. So miraculously this week I try, she all of a sudden can tuck her chin in!

Secondly, she has been completely weaned off her meds to dry her secretions since Saturday. I have not had to suction her at all!

I have also started doing a lot of feeding therapy with her, since no one else will!  I dip her binki in milk while she eats, she handles the little drops I give her fine. I put lots of toys with different textures on them in her mouth. I let her suck on a barely wet wash cloth during bath. She loves it. So glad because a major problem with these kids, especially when they've been suctioned and been on a ventilator, they develop an oral aversion and don't want ANYTHING in their mouths. She's doing amazing and there is no doubt in my mind this child will develop normally and swallow!

Sunday our home teacher who is a doctor came back, he does not think the progress we've seen this week is a coincidence. He felt that his treatment worked and wants to continue. Can't tell you how much I am interested in what he does. Amazing!  He's coming back next Tuesday!

I want to give credit where credit is due for a minute!  Although Georgia has an amazing group of doctors, has gotten to the right places at the right times, and we have a great home teacher who is helping us beyond belief, this progress is not the work of man. While doing scripture study I ran across this scripture; "Yea and the Lord said also that after ye have arrived in the promised land, ye shall know that I the Lord am God. And I the Lord did deliver you from destruction..." 1 Nephi 17:14.  When I read this my heart felt full and peaceful.  When Georgia was 1 month old we had doctors telling us horrible things. She would never talk, she would have brain damage, and the worst Thing any parent can hear, they said she would most likely not live long, at worst 6 month, at best ten years. I know Who has delivered her.

For now my days consist of very busy, tiring work. Thank goodness I know I'm doing the Lords work. It helps me put all of this into perspective. I know Georgia's life has a meaning and she was given to me for a reason. I'm feeling thankful for all my babies tonight and for my knowledge of the Gospel of Jesus Christ.

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