So we just got back from the swallow study and she didn't pass. The swallow study is a test that shows exactly what's happening during the attempt to swallow. They give a bottle full of barium and watch in an xray while she swallows. In the first swallow study, Georgia failed after seconds, the barium didn't even make it down the throat, it came straight up her nose. She had a episodes where she would choke, even on her own secretions. This time most went down her throat, but it wouldn't go all the way and she began aspirating, which means she started breathing it in her lungs. So she failed. But, I wasn't even expecting to do a swallow study this soon. If she would've passed it would've been a total bonus. AND she showed some progression from last time. They want to repeat in 3 months.
So we're back to how can we get this baby to gain weight. She's under 11 pounds. It's funny because we were shopping for Halloween costumes last night and all she would fit in we're the little newborn ones. I've always loved those and wanted a newborn on Halloween so I could put them in a cute little onesie costume, so, she'll be in a little newborn outfit cute as can be this year ;).
This has me looking even more forward to her spinal tap. They keep calling this a neurological issue. However, Georgia is totally normal and alert in every other way. There has to be an explanation as to why those muscles just don't work! We see the neuro who will hopefully do the spinal nov 16th. Hopefully he finds the reason for her poor swallow. In the meantime, I still have faith and a lot of hope. I feel like its a blessing that she's even come this far. She really does light up our lives and adds such a sweet Spirit to our home. Keep praying!
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